Let's support each other!
National Crisis Hotline
(for people in emotional distress or suicidal)
Alzheimer's Association National Hotline
Veterans Crisis Line
"Juvenile arthritis (JA) is not a disease in itself. Also known as pediatric rheumatic disease, JA is an umbrella term used to describe the many autoimmune and inflammatory conditions or pediatric rheumatic diseases that can develop in children under the age of 16. Juvenile arthritis affects nearly 300,000 children in the United States."
Are you taking care of a loved one, locally or long-distance, who is advanced in age, disabled or chronically ill? Then YOU are a family CAREGIVER in addition to being a spouse, relative or friend! It is important for all family caregivers to identify themselves as such because many useful resources exist to assist them in their caregiving. (So when you see "tools & resources for caregivers," you will know they are for you!) While you may not need the help today, you eventually will. It has nothing to do with the caregiver's abilites and everything to do with the nature of the role. Caregiving is best carried out with a care team that you assemble, comprised of your medical professionals, family and friends. Together, you can carry out all of the tasks that are needed without the primary caregiver reaching the point of exhaustion or falling ill. Take advantage of the assistance that these and other websites provide. (Do explore CaregivingCafe.com, too!) You will be a stronger and healthier caregiver!
Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases as a global health challenge. Learn more about the History of Rare Disease Day, Past Successes or the Goals and Plans for this year.
Please support Rare Disease research in order to find effective treatments & cures! Thank you!
Rare Diseases Clinical Research Network - information & clinical studies
National Human Tissue Resource Center - provides researchers tissues, organs donated by people with rare diseases
Rare Connect - connecting rare disease patients globally
Support: assistance, comfort, advocacy
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Thank you for visiting our website! Here, we hope that you will find ways to more easily address the many caregiving issues that arise as one cares for oneself or for someone else. Rather than looking for answers to questions across many topics by conducting many individual searches or asking lots of people, we have assembled links that provide information, resources and support in one location. Among these are Social Security, Medicare, health insurance, COBRA, benefits, eldercare, mobility, assistive technology, caregiver burnout, How-to videos, products & services that are available to care recipients and to caregivers. You have plenty to deal with without using up your precious time and energy trying to get information in order to find effective solutions!
We are also working on CaregivingCafeService, a paid service that gives you, the caregiver or care recipient, the choice of letting us find services and products for you. When time is limited, or when you need to deal with other pressing concerns, we can take care of things like booking doctor’s appointments; booking reservations for travel, lodging or entertainment; looking for services like accommodations, long-term care, home care, hospice or local transportation; or perhaps booking that desperately-needed break. We are here to help you with your caregiving duties.
CaregivingCafeService can also provide transportation to doctor’s appointments and just about any other destination in the Austin, Texas area. We can even help you run errands or take you or your loved one to visit friends! We want to make caregiving easier for you because we understand. We have been there!
The care you give makes a big difference to your loved one. We aim to help and to support you along the way. Do remember that you are not alone and that many people and organizations exist to help and to guide. Please contact us if you have any questions or concerns.
The author of CaregivingCafe.com is not a professional.
CaregivingCafe.com in no way or form replaces a doctor or any medical professional. It is meant to be a source of information and a place to find groups and organizations related to caregiving.
CaregivingCafe.com does not guarantee the validity of the content of any other website and does not necessarily agree with or support any opinions stated therein. Do discuss with your doctor or health care professional any issues or concerns you may have.
CaregivingCafe.com aims to pass along practical information about caregiving. If you are the owner of an article or website included in this site and you would like me to remove either, please email me at and I will do so.
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