New caregiving links below have info on finding home care, hospice, reminders to take medications on time and even a mobility device that lets paraplegics walk despite atrophied legs!

 

OnTimeRx   –  reminders to take your medications on time

Depend One   –  personal medical alert system

ReWalk     –  mobility device for paraplegics

Sensory Swim    –  special needs swim lessons

Enabled Kids    –  enabling children with neurological disorders

Mountain West Chiropractic    –  chiropractic care to restore health

Hospice Palliative Care Ontario    –  info on hospice palliative care in Ontario

Practical Assisted Living Solutions    –  modular home additions for seniors or handicapped persons

AVM Survivors    –  support & community for AVM survivors

Rare Genomics Institute    –  funding research of rare diseases

Fight Conquer Cure    –  Cancer Research Fund for adolescents & young adults

Cancer Center    –  patient-centered cancer treatment

Medicare Wire    –  Medicare news, blogs, benefits

 

 

The new caregiver links below provide tips and experiences from other family caregivers, spiritual motivation and support, as well as getaways to find inspiration and relaxation.

 

HELP WITH HOME CARE

Boomer to Boomer Online  – sharing information, lessons, tips, stories about caregiving

Care to Know  – information, experiences about home care; support for caregivers & families

Community Care Access Centre   – connecting you to care to remain at home; long-term care, Ontario

OTCsafety  – information, tips to safely use over-the-counter medicines

We Shop and Deliver  – groceries delivered to your home – available in some states in US

Your Task Angels   – help with homecare, errands, transportation

 

 

HEALTH & MEDICAL

Parkinson’s Disease Foundation   – research funding, information, strategies for living with Parkinson’s

Basic Spine  –  brain & spine care, CA

Gayle Paul  – psychotherapist, relationship expert; tips & research on happiness

Lewy Body Dementia Association  – outreach, education, research, support for those affected by LBD

Connecting-Nurses   – nurses sharing ideas, advice, innovation

 

 

MOTIVATION & DIVERSIONS

The Best Brain Possible  – information & inspiration to improve your brain & your life

Rest Ministries   – spiritual, emotional support for people living with chronic illness, pain

It’s Because I Love You by Linda Joan Arzente, BSN, RN  – information guide on senior caregiving; tips, checklists for good caregiving

Wheelchair Accessible Holiday Homes for Disabled People  –   holiday villas in France, Hungary, The Netherlands & Thailand for disabled people

Camping-Holiday-Sites   – camping holidays in Europe

Gypsy Nester    – celebrating life after kids: adventures discovering the world!

Clever Housewife  – helping others with budgeting, parenting, recipes, DIY, etc.

Puzzle with Me   – puzzles for people with Alzheimer’s or dementia and their caregivers; 10% of revenue goes directly to Alzheimer’s Disease International for research & support

 

The new caregiver links below bring you in-home services, medical products & supplies, help running your endless errands, ways to securely store and to share your medical information when needed, and motivation to rise above your current challenges… and more!

 

 

HEALTH & MEDICAL

Always Med  – secure storage & easy access to your medical records

Join Clinical Trials  – resource for finding & joining clinical trials

Texas Pain  – find relief from pain, Texas

 

 

PROVIDING HOME CARE

CareProvider  – search engine for finding care: sitters, eldercare, pet & house sitters

Conscious Elder Care  – holistic & educational training for caregivers

First Light Home Care    – in-home care, Winter Park, FL

Comfort Keepers Senior Care  – in-home care for seniors, new mothers, Oklahoma City, OK

HCR Health  –  in-home health care, Rochester area & upstate NY

HANDAustin  –  in-home care for Seniors, disabled & women with breast cancer, Austin, TX

Qualicare Ottawa  –  in-home Senior care & Health care, Ottawa

Medical Guardian  –  medical alert system

HealthLinc Medical Equipment  – mobility & health care products, Lower Mainland, Canada

Parent Giving  – Senior care articles & products; Alz, diabetic, incontinence, bath, medical supplies

 

 

HELP & SUPPORT

The Errand Girl  – runs errands & handles anything on your to-do list

Madison Claire Foundation  –  creating play areas for children with disabilities

Tim Gort  – advocacy on behalf of special needs children, families & those affected by medical errors

Color of Teal  – awareness, education, support for women with ovarian cancer

 

 

MOTIVATION

Happiness Virus Blog   – insights into nurturing ME!

Passage to Nirvana by Lee Carlson  – traumatic brain injury survivor helps others succeed in tough times

Think and Grow Balls by J.D. Bloodstone  – free yourself of limited thinking, bring about positive personal change

 

The new caregiving links below can help you find in-home care as well as a home for your Senior.  Telehealth brings the doctor to your chronically ill loved one and medical alert systems help to keep them safe.  Cadence BioMedical’s Kickstart helps people with mobility impairments walk, improve stability and enhances their rehab!

Do take advantage of the products and services below, which aim to ease your caregiving and loved one’s, too.

 

PROVIDING CARE

Caregiver’s Survival Network  – connect with other caregivers & resources on Caregiver’s Survival Network Facebook Page  (website under construction)

eCare Diary  – bringing resources to caregivers: find care, learning center, shopping

Right at Home  – In-home care and assistance Rancho

Jae-Chell Adult Family Care Home – adult family care home in West Palm Beach, FL

Quality Life Solutions  – geriatric care management, financial and legal services in Fresno, CA

Care Cycle Solutions  – telehealth & managing care for the chronically ill

 

 

HEALTH PRODUCTS

Pink Ribbon Annex  – resource for women who have or had breast cancer: garments, products, information, education & awareness

Type Free Diabetes  – diabetic products, medical supplies, recipes

Dignity Resource Council  – garments for showering or personal hygiene

Sunny SleeveZ  – chemical-free sun protection for arms

Cadence BioMedical  – Kickstart helps to make walking easier with mobility device

Seniors Living Independently  – lift chairs and scooters

Rescue Alert of CA  – medical alert system & medical alarms for Seniors

 

 

COPING WITH CAREGIVING

JOY-spirations for Caregivers & other inspiring books by KarenBoerger

Caregiving Our Loved Ones: Stories and Strategies that Will Change Your Life by Nanette J. Davis, Ph.D.

The Purple Jacket  – caregiving needs of LGBT seniors and caregivers

Stress Free Kids  –  books, CD’s to reduce stress, anxiety, anger for kids, teens, adults

 

 

TRAVEL & ENTERTAINMENT

Norfolk Disabled-Friendly Cottages  – self-catering cottages for able and disabled guests on a working farm in Bircham, UK

Travel-World  – reservations for hotels, cars, flights

Senior Ave  – online source for senior nightlife, travel and social events

 

New caregiving links ranging from mental health, memory care & health forums to high tech for seniors, funding kidney & arthritis research, and creating online health records to provide to emergency staff.

 

Memory Care Professionals  –  forum for Memory Care professionals to share information

The BCAT  –  BCAT scoring, information on cognitive impairment & memory loss

Alzheimers   –  gov’t free information resource for Alzheimer’s & other dementias

Forget Me Not Book  –  create an online memory book of stories & photos

Healthy Place  –  trusted mental health information & support

Surviving Mental Illness  –  by Linda Naomi Katz

ReDoable Life  –  putting the brain back together after a stroke

Men Against Breast Cancer  –  empowering & educating men to be effective caregivers when breast cancer strikes a female loved one

CureArthritis  –  funding arthritis research

UKRO Charity  –  funding kidney research today

GovSpot.com  –   links to gov’t & state services, Congress, gov’t jobs

Disability News Radio   –  a voice for people with disabilities, promoting awareness, education, inspiration @MonicaWharton

HealthGuru  –  info on health, beauty, fitness &  more

Parent Giving  –  eldercare articles, home care products & supplies

Senior Tech Rally  –  technology education for seniors

Smart911  –  create & provide critical, lifesaving health data to 911 in case of emergency

Social-Medicine  –  global health forums, health chats & medical blogs

Band Back Together  –  blogs for people to share their stories; resources on health & illness

MyThirtyOne.com/LisaWRoberts  –  gifts, storage solutions with style

 

Passing along lots of useful links that can help your caregiving!  Please browse the lists below and visit the websites to find plenty of good resources, tips and inspiration to make your day more manageable.

 

CAREGIVER SELF-CARE, MOTIVATION

Inspire – online health & wellness communities for patients & caregivers

Groups@Care – join / form groups with similar interests

Caregiver Stress – caregiving topics, expert advice, self-care

Laughing with Mary Maxwell – humor, quick wit about life

Mary Ann Liebert Publishers – information on science, technology, medicine

Arleen Alleman – author, fiction

 

 

CAREGIVING TRAINING & TIPS

aQuire Training Solutions – online training courses, Alz & memory care training courses

Wheelmap – map of wheelchair accessibility around the world

Care Conscious – Educating, preparing family caregivers

 

 

HOMECARE, FACILITIES, BENEFITS, DOCTORS

Rankings & Research – rates hospitals, nursing homes, health plans, diets, doctors

LongTermCare.gov – national clearinghouse

Home Care Generations – home care help in Phoenix, AZ

Golden Touch Caregivers – non-medical home care

Ethos – coordination, delivery of home & community-based care

Visiting Nurse Service of NY – home health care services in NY

Brooke’s Home Care – non-medical home care; Ontario, Canada

Community Connections TimeBank – share talents to help others, get favor back in return, free

Easier Living – medical products, services for home, tips

The Easier Living Blog – help manage day to day

Elders Resource LLC – help with Medicare, locating benefits, filling out forms

CarePlanners – navigate healthcare system, coordinating care for self & family; understand Medicare, insurance, diagnosis

Chamber of Hope – free Oxygen (mHBOT) for sick children, Tampa Bay, FL

AAHCP – directory of doctors who make house calls

 

I am always on the lookout for great information that caregivers can put to good use.  Please visit the links below to find resources, insights and tips that can help your caregiving run a little more smoothly.

Keep in mind that our brain needs fuel to stay sharp. Some articles teach, others enlighten.  Others merely propose a different perspective on common ideas. Consider them mental calisthenics!

Explore & enjoy!

 

 

Small Bird Studios  –  loss of child blogs

Invisible Disabilities  –  videos, education & support for people with chronic illness

Association of Blind Citizens  –  resources for the blind

Schizophrenia Forums

National Stroke Association  –  education, treatments, support

Ability4Life  –  resources for our aging parents

Best-Endings  –  addressing end-of-life topics

NHS local  –  UK health information

Genetics Home Reference  –  guide to genetic conditions

Caregivers of AIS Support Group

Wallpaper Magazine –  design, interiors, architecture, fashion, art

Adventurer Jim Clash – “interviews high-profile guests who push their life to the limits”

Compassion and the Individual  – What is the purpose of life?

Create your own support groups  –  join or start your own

 

CRISIS HOTLINES & HELPLINES

Whom can a caregiver call with a caregiving or health-related question?

If you or someone with you is in danger, suicidal or is having a medical emergency, call 9-1-1 asap!

I have collected some phone numbers for Hotlines, Helplines and website links that provide information on several topics, such as stroke, heart attack signs or elder abuse.

Right now, in a non-emergency your best bet is to:

  • call your caree’s doctor’s office and speak to a nurse
  • if a nurse is not immediately available, leave a message and call the numbers below
  • Google the topic or visit the website of the organizations that focus on the condition you are looking for
  • Disease & Condition Organizations at CaregivingCafe has lots of links with information, including some on proper care and support


MEDICAL EMERGENCIES

WARNING SIGNS OF HEART ATTACK, STROKE OR CARDIAC ARREST:

CALL 9-1-1 IF SIGNS ARE PRESENT!

 

CPR in 1 minutecall 9-1-1 first!

CPR First Aid Instructions

 

Poison Control Centers  1-800-222-1222

 

 

CRISIS HOTLINES

NATIONAL CRISIS HOTLINE    1-800-273-8255

Veterans Crisis Line   1-800-273-8255  Press 1

National Sexual Assault Hotline    1-800-656-HOPE

National Suicide Prevention Hotline    1-800-SUICIDE  1-800-273-TALK

The Center to Prevent Youth Violence   1-866-SPEAK UP

National Domestic Violence Hotline  1-800-799-SAFE   [1-800-799-7233]

State Directory of Helplines, Hotlines, and Elder Abuse Prevention Resources

 

 

CAREGIVING INFORMATION & HELPLINES

Caregiving Resources

Caregiver.com  1-800-829-2734

CaregivingHelp.org    773-508-1000

National Family Caregivers Association  (NFCA)   1-800-896-3650

Family Caregiver Alliance  (FCA)    1-800-445-8106

Services for Family Caregivers – lots of hotlines!

Veterans Affairs (VA)National Caregiver Support    1-855-260-3274

Alzheirmer’s Foundation of America   1-866-232-8484

Alzheimer’s Association   1-800-272-3900

Cancer Care  1-800-813-HOPE    [1-800-813-4673]

American Diabetes Association   1-800-DIABETES   [1-800-342-2383]

Easter Seals  1-800-221-6827

Kidney Helpline: NKF Cares  1-855-653-2273

Lung Helpline  1-800-LUNGUSA   [1-800-586-4872]

Mended Hearts  1-888-HEARTS99   [1-888-432-7899]

American Heart Association   1-877-AHA-4-CPR   [1-877-242-4277]

American Stroke Association

Stroke Family Warmline: information & support    1-888-4-STROKE   [1-888-478-7653]

State Directory of Helplines, Hotlines, and Elder Abuse Prevention Resources

ElderCare Locator (report elder abuse)  1-800-677-1116

Elder abuse information

Children of Aging Parents  1-800-227-7294

Hospice Foundation of America    1-800-854-3402

National Hospice & Palliative Care    1-800-658-8898  1-877-658-8896  (multi-language)

 

Update from the US Department of Veterans Affairs:

Links to all VA organizations currently using social media: Facebook, Twitter, Flickr, YouTube & Blogs can be found at the link below.

VA Social Media Directory

 

 

Coming up with gifts for holidays and birthdays has come to trigger a series of mental acrobatics for me.  In my quest for a gift that a family member will delight in receiving – and keeping – ideas fly and bounce and spin through my head as I consider things that he or she enjoys.  It is an exhausting rite every year, especially because we are fortunate, content and grateful for what we do have and not really the type that wants more.

A few years ago, as I set off on my yearly search, I remembered my mother telling me when I was young that the best gifts are those made by hand.  It symbolized giving of oneself to others.  What greater gift than that?  With that thought in mind, I chose to make some jewelry and scarves in the colors that I knew the recipients liked.  I think everyone liked them!  I do have a very polite family.

Well, last year, knowing that my mother didn’t really want anything… just like every year… I had a brainchild: I put together a family photo album for her.  Because we are scattered all over the country, from California to Pennsylvania by way of Texas, we are not able to get together often.  This way, lots of family “came” to her, sharing special events that had taken place throughout the year but which she could not attend.  It turned out beautifully!  Not because I’m tooting my own horn, but because my mother loved it!  Mission accomplished!

Putting together the photo album was so easy: I used Snapfish.  I asked family to email me photos of important events, of gatherings, of relaxing, of anything that showed them enjoying themselves.  I uploaded them to Snapfish, added them to the album that I had selected, grouped them as I wanted, and added captions.  That’s it!  I was amazed at how easy it was to create, and I’m definitely not high-tech savvy at all.  When finished, I emailed a link to all family so they could view the album online and ordered a hardbound photo book for my mother.  She got it right on time and was thrilled.

Snapfish has lots of themes for all occasions.  With time passing so quickly, it’s nice to sit back and remember good times spent with family and friends.  After all, aren’t they what really matters?

You can bring the joy of memories to a loved one miles away as part of your long-distance caregiving with several photo services online:

 

Snapfish

Photobucket

Shutterfly

Blurb

Lulu

Smilebooks