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Caregiver Support:

resources, guidance, wellness

 

Caregiver support comes in many forms.  Whether you are looking for resources, counseling, guidance, services, respite, wellness or seeking other caregivers, the links below will take you to several websites where much help is offered.  Keep in mind that if you don’t see what you are looking for right away, try another website.  Chances are that you will actually find more useful and pertinent information than you thought you would need!

Remember to make your health care professional an integral part of your caregiving team.  He or she, along with the medical staff, have experience dealing with cases like yours.  Ask questions!  If they cannot answer them, then ask them to give you the name of someone who can.  Ask for alternative treatments or medications!  Ask them to think beyond their specialty and address all issues of concern, as many conditions can affect other parts of the body.  For example, CRPS / RSD [a very painful nerve disease] can eventually affect circulation, skin and vision. 

Our family’s caregiving experience has been a “learn as you go” type of journey.  We anticipated some things, like one day needing crutches or a walker.  Knowing this, we looked for such items so we could find them when we actually needed them.  Other things, like difficulty going up 2 steps in our house, finding a desk or table that was high enough to be used while sitting on a recliner, or erratic blurry vision caught us off guard.  We have come to ask ourselves, “How can we make this task easier?”  We have often improvised and thought “outside the box,” focusing on comfort and ease of use.  As a result, we found someone who could build a ramp in our hallway; we found a desk with clear adjustable shelves that pivot on a pole; we found a hands-free embroidery magnifying glass that hangs from your neck [this prevents painful hands from becoming more painful, tired and shaky].  It is an ever-evolving puzzle, but we aim to solve it!

We have also accepted the fact that our life has forever changed and that there is no going back.  This may be the hardest obstacle to overcome, but you can do it and you must!  Once you accept the current situation, you can focus on managing it.  This does not mean giving up hope for recovery or improvement or allowing yourself to crawl into an emotional black hole!  It means facing your circumstances head on and finding ways to live as good a life as you can!

 

Visit the links below for ways that organizations and websites can provide caregiver support.

 

ADMINISTRATION ON AGING - NATIONAL FAMILY CAREGIVER SUPPORT PROGRAM 
The NFCSP offers a range of services to support family caregivers. Under this program, States shall provide five types of services:
    •    information to caregivers about available services,
    •    assistance to caregivers in gaining access to the services,
    •    individual counseling, organization of support groups, and caregiver training,
    •    respite care, and
    •    supplemental services, on a limited basis


MEDICARE
MEDICARE provides information on support, billing, care options and navigating Medicare.


AARP
AARP brings together many different topics, including Love & Relationships, Travel, and Caregiver Abuse.

CAREGIVER’S HOME COMPANION
Our resource directory has more than 40,000 entries, and our online archive has more than 2,500 articles on elder care, caregiver resources, family care giving, spousal caregiving and general healthcare. We even have weekly columns on Practical, Professional, Spousal and Spiritual caregiving, as well as online forums and links to other helpful sites.


CAREGIVER’S HOME COMPANION  -  Practical Caregiving     
Actually, you might be able to get paid by the government for taking care of your mom, but I cannot guarantee you will. Call 1-800-677-1116 to find the eldercare resources in your community. Payment can be possible under the Older Americans Act of 2006. It is sponsored by the federal government but administered by each state. Be sure to ask if there is some other way you can get help.
 
Run your mother’s [or an elder’s] information through these websites – www.benefits.org and www.govbenefits.gov. You might find something to check further to see if she qualifies for help. You don’t need to identify your mother [or elder].



SUPPORT WEBSITES

AACY  -  resource for children caring for ill, disabled, injured or elderly family members

ALZHEIMER'S, DEMENTIA, CARE & SUPPORT FOR CAREGIVERS & FAMILIES  

PREVENTING CAREGIVER BURNOUT  -  HELPGUIDE.ORG

WELL SPOUSE ASSOCIATION  - support for spouses, face-to-face & online

CANCER CONNECTION  -  SUPPORT FOR CANCER PATIENTS & CAREGIVERS

CANCER [CHILDHOOD]  -  SUPPORT & OUTREACH FOR FAMILIES & CAREGIVERS

CAREGIVER ACCESS  - LEGAL, FINANCIAL, HEALTH, CASE MGMT. INFO & SUPPORT

CAREGIVER RESOURCE CENTER  -  AUSTIN GROUPS FOR THE ELDERLY

CAREGIVER SOS  -  TELEPHONE LEARNING, STRESS BUSTERS, RESOURCES

CAREGIVER SUPPORT:  ABOUT.COME:  SENIOR LIVING

CAREGIVER SUPPORT GROUPS IN YOUR AREA

CAREGIVER SUPPORT PROGRAM  -  AREA AGENCY ON AGING OF THE CAPITAL AREA

CAREGIVER U  -  CLASSES FOR CAREGIVERS IN AUSTIN AREA

CAREGIVER SEMINARS  -  FREE SEMINARS AT AGE AUSTIN

THE CAREGIVER SPACE  -  connect with caregivers, form groups, resources

EDUCATION & SUPPORT - NFCA

EMPOWERED CAREGIVER NETWORK  

MEDICARE

ADMINISTRATION ON AGING:  CAREGIVER  -  AOA.GOV

AREA AGENCY ON AGING  -  PROGRAMS, SUPPORT, BENEFITS, MORE

THE NATIONAL FAMILY CAREGIVER SUPPORT PROGRAM  -  AGINGCAREFL.ORG

SUPPORT FROM OTHERS IN YOUR SITUATION  -  TREATMENTDIARIES.COM

HELPING YOURSELF: STARTING OVER  -  CAREGIVING.COM

HELPING YOU HELP FAMILY AND FRIENDS  -  CAREGIVING.COM

HELPING YOU HELP OTHERS  -  CAREGIVERSUPPORTNETWORK.ORG

CODES TO LIVE BY  -  CAREGIVERSUPPORTNETWORK.ORG

HOME COMPANION, ELDERLY CAREGIVING  -  CAREGIVERSHOME.COM

CAREGIVER SUPPORT  -  CARINGFORTHEAGED.SUITE101.COM

HOME HEALTH & HOSPICE -  CAREGIVERSUPPORTNETWORK.ORG

ELDERCARE’S ONLINE CAREGIVER SUPPORT NETWORK

RESOURCES FOR CAREGIVERS  -  MAKOA.ORG

WALGREENS CAREGIVER SUPPORT  -  WALGREENS.COM

AARP CAREGIVING  -  AARP.ORG

POSITIVE CHANGES COUNSELING - SUPPORT

WHO CARES FOR THE CAREGIVER?

ISSUES WITH CAREGIVING - MANAGING COSTS, RELAXATION, TAXES, MORE

KEEPING FRIENDS BY BEING A GOOD FRIEND

COMMUNICATION IS VITAL - TIPS TO EFFECTIVE COMMUNICATION WITH LOVED ONES, DOCTORS, FAMILY, ETC.

4 WAYS TO DEAL WITH STRESS

VA CAREGIVER SUPPORT

CARE FOR ADULTS AND SENIORS.  PEACE OF MIND FOR YOU

FAMILY CAREGIVERS ONLINE - FACTSHEETS, WORKSHEETS, TOOLS

CAREGIVER TRAINING - RESOURCES, TRAINING, DAY TO DAY CARE

CAREGIVER RESOURCES AND SUPPORT FOR FAMILY CAREGIVERS

AUSTIN GROUPS FOR THE AGING - SEMINARS ON CAREGIVING

THE CARE COMPANY  - guidance, coaching, support for caregivers

PARKINSON'S: CAPITAL AREA PARKINSON'S SOCIETY - Central Texas

PARKINSON'S: NATIONAL PARKINSON FOUNDATION

CAREGIVER'S GUIDE FOR CANADIANS  -  experiences, recommendations for caregiving

CARING WISE  -  coordinate care, organize health records



COORDINATING HELP & STAYING IN TOUCH

LOTSA HELPING HANDS HOME

LOTSA HELPING HANDS CREATE A COMMUNITY

CAREPAGES

CARINGBRIDGE

CARECENTRAL

CAREFLASH

eCAREDIARY

CONNECT CAREGIVER  

MEALTRAIN - organize meals for family or friends

GIVEFORWARD - coordinate financial help

eCARING - manage & monitor health care

NONNATECH - monitor your loved one from computer, phone, live video

GROUPS@CARE - join groups, exchange care

 

 

POSITIVE THINKING, LOWERING STRESS, WELLNESS

CNN.COM  -  HOW TO SQUASH WORRY...IN TOUGH TIMES

HOW TO TRAIN YOURSELF TO BE IN THE MOOD YOU WANT  - ROCKYOURDAY.COM

POSITIVELY POSITIVE - optimism, inspiration, wisdom, possiblities every day

QUOTES  -  THINKEXIST.COM

DEVELOP A POSITIVE ATTITUDE FOR STRESS RELIEF  -  ABOUT.COM

GIGGLE ON -  uses laughter as a tool for emotional, spiritual, mental & physical wellness

LAUGHING MORE AND HAVING FUN FOR STRESS RELIEF  -  ABOUT.COM

PEACE OF MIND TIPS AND ADVICE  -  SUCCESSCONSCIOUSNESS.COM

QUOTATIONS ABOUT ATTITUDE  -  QUOTEGARDEN.COM

DEVELOPING A POSITIVE ATTITUDE AND LIFESTYLE  -  PURICA.COM

DEVELOPING A POSITIVE ATTITUDE AT WORK AND LIFESTYLE  -  PAYSCALE.COM

THE 3 STEP APPROACH TO A POSITIVE ATTITUDE  -  HEALTHANDYOGA.COM

BELIEVE IN YOURSELF - AND TAKE CHARGE OF YOUR LIFE

CAREGIVER STRESS - VIDEOS TO COPE, REDUCE STRESS

SOMA VIDA - FIND WORK/LIFE BALANCE & WELLNESS

JUDY KEGG - WATSU & MASSAGE THERAPIES, AUSTIN, TX

HILL COUNTRY HEALING ARTS - MASSAGE & WATSU, NEAR AUSTIN, TX

LOST IN YOUR CARE  -  regain self & health while caring for someone long-term

LIFE SCRIPT  -  healthy living for women

LETTRS  -  write to caregivers, carees, friends in exciting "stationery"

ME AND MY CAREGIVERS  -  care coordination, communication, record storage, more

CAREGIVER'S SURVIVAL NETWORK  -  connect with caregivers, form groups, resources

CYC FITNESS  - high-energy, music-driven indoor cycling studio; social active life, help charities

SENIOR HOLISTIC LIVING  -  guidance, encouragement, more balance in life


 

CAREGIVING COACHING

Professional advice from experienced caregivers, Registered Nurses, Health Coaches and others trained to manage caregiving effectively and compassionately.

Coaching is available in various ways including in person, by phone, through devices or online.

 

The Care Company - Cindy Laverty

CareGiving - Denise Brown

The Intentional Caregiver - Shelley Webb

The Caregiver Console - Ileana Perez de Rivera

Holistic Health Coaching and Cancer Support - Annette Ramke

Coach Theresa Cloud Eagle - Theresa Cloud Eagle

Elder Care Giving - Joanna R. Leefer

 

 

 

 

 

 

 

 


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