CaregivingCafe.com > Directory > Disease & Condition Organizations

Disease & Condition Organizations 

Information, Proper Care & Research

 

This section contains links to many disease and condition organizations that provide a wealth of resources and information about a particular medical ailment, research, support, prevention, news, etc.  Explore the websites!  Knowledge about your situation will enable you to navigate through your caregiving experience with more realistic options, a better understanding about what can and cannot be, and the confidence that allows you to make better decisions.

You will usually find other people in your caregiving situation as well.  They say there is strength in numbers and the number of caregivers is growing!  If you want to “talk” to other caregivers dealing with similar circumstances to yours, you can find them under blogs & forums within the websites listed below or in CaregivingCafe's Main Menu’s BLOG and FORUM.

 

 

LEARN CPR IN 1 MINUTE

 

CAREGIVING INFORMATION, SUPPORT GROUPS  -   MEDICINE.NET

Mental Health Topics
    •    Anxiety
    •    Stress
    •    PTSD
    •    Panic Attacks
    •    Anorexia

 

Top 10  Caregiving Related Articles
    •    Bone Cancer
    •    Brain Tumor
    •    Breast Cancer
    •    Cervical Cancer
    •    Colon Cancer
    •    Depression
    •    Ovarian Cancer
    •    Prostate Cancer
    •    Stress
    •    Uterine Cancer
    •    Complete List »

 

ALZ ONLINE

ALZ ORG *

ALZHEIMERS.GOV   INFO, RESOURCES, SUPPORT (US GOV'T SITE)

ALZHEIMER'S: BETTY'S LOVE ALZHEIMER'S CHARITIES - SUPPORT, INFO, ACTION, ADVOCACY

ALZHEIMER'S: HELP FOR ALZHEIMER'S FAMILIES

AMERICAN DENTAL ASSOCIATION

AMERICAN HEART ASSOCIATION  **

AMERICAN MEDICAL ASSOCIATION

AMERICAN RED CROSS

AMERICAN STROKE ASSOCIATION  

AUTISM - EARLY SIGNS OF AUTISM

AUTISM RESEARCH INSTITUTE

AUTISM SOCIETY

AUTISM SOCIETY OF GREATER AUSTIN  

AUTISM SPEAKS

[THE] BCAT  -  LATEST RESEARCH ON MEMORY LOSS, BCAT ASSESSMENT TOOL

BLIND CITIZENS  

BRAINLINE  -  TRAUMATIC BRAIN INJURY

BRAIN INJURY [Global Picnic]

CANCER [CHILDHOOD]: BRIGHTER TOMORROWS

CANCER: THE CARE COMMUNITIES -  SUPPORT FOR CANCER PATIENTS & CAREGIVERS, AUSTIN, TX

CANCER CONNECTION  -  AUSTIN, TX

CANCER: COVERS FOR CHEMO  -  NON-PROFIT GIVES SNUGGIES-LIKE COVERS TO CHEMO PATIENTS

CANCER LIFELINE  -  SUPPORT, INFO, CLASSES, EXERCISE PROGRAMS

CANCER: ORAL CANCER FOUNDATION

CANCER: ORAL CANCER SIX-STEP SCREENING

CANCERCARE

CURE ARTHRITIS -  FUNDING ARTHRITIS RESEARCH

DEAFNESS:  NATIONAL ASSOCIATION OF THE DEAF

DEMENTIA: COMMUNICATING WITH PEOPLE LIVING WITH DEMENTIA  -  CARE UK

DISABILITIES - CENTERS FOR DISEASE CONTROL AND PREVENTION

DISABILITIES - INFORMATION & RESOURCES FOR PEOPLE WITH DISABILITIES - DISABOOM

ELDER CARE ONLINE

ELDER - NIH SENIOR HEALTH

ELDERLY CARE GIVER SUPPORT AND COUNSELING: AGE WISE LIVING

EPENDYMOMA - CERN FOUNDATION: INFO, TREATMENTS, CARE, CLINICAL TRIALS

EPILEPSY FOUNDATION 

FACINGDISABILITY  -  SPINAL CORD INJURY

FIBROMYALGIA: NATIONAL FIBROMYALGIA ASSOCIATION 

FRONTOTEMPORAL DEMENTIA [PICK’S DISEASE]  SUPPORT

GET PALLIATIVE CARE

HEALTHY PLACE  -  MENTAL HEALTH INFO & SUPPORT

[THE] LEUKEMIA & LYMPHOMA SOCIETY

LEWY BODY DEMENTIA ASSOCIATION  

LIFTING TECHNIQUES FOR HOME CAREGIVERS

LUPUS 

MEMORY CARE PROFESSIONALS  -  FORUM, INFO ON MEMORY CARE, DEMENTIA

MEN AGAINST BREAST CANCER  -  CARING ABOUT THE WOMEN MEN LOVE

NATIONAL ALLIANCE ON MENTAL ILLNESS

NATIONAL OSTEOPOROSIS FOUNDATION  

[THE] NEW YORK MEMORY SERVICES - ABC's of Aging, Alzheimer's, Estrogen and Memory

PARKINSON'S: CAPITAL AREA PARKINSON'S SOCIETY - Austin, TX

PARKINSON'S: NATIONAL PARKINSON FOUNDATION

PARKINSON'S DISEASE CAREGIVING

PARKINSON'S DISEASE FOUNDATION

PARKINSON'S ASSISTANCE NETWORK, DIRECTORY & ALLIANCE: P.A.N.D.A. - for better quality of life

PDCAREGIVER - for CareGivers of People with Parkinson's

RARE CHROMOSOME DISORDER SUPPORT GROUP - INFORMATION & SUPPORT

REFLEX SYMPATHETIC DYSTROPHY SYNDROME ASSOCIATION -  RSDSA / CRPS

RHEUMATOID ARTHRITIS CAREGIVING  -  EVERYDAY HEALTH

RSD HOPE

RSD / CRPS DOESN'T OWN ME

SPECIAL NEEDS CHILDREN - THE COFFEE KLATCH - expert info for families of children with special needs

SPECIAL NEEDS KIDS - NATHANIEL'S HOPE  -  hope for special needs kids & families

SPINA BIFIDA ASSOCIATION OF GEORGIA  

STROKE SUPPORT GROUPS - FIND GROUP, INFO, SIGNS, LIFE AFTER STROKE, MORE

STROKE - PREVENTION, TREATMENT, REHABILITATION, SUPPORT

UKRO CHARITY  -  FUNDING KIDNEY RESEARCH

VASCULAR HEALTH RESOURCES - FIND DRS., TREATMENTS, INFO, TESTS, PREVENTION



From   RESOURCES FOR CAREGIVERS
   
Alzheimer's Association  *
American Association for Retired Persons (AARP)
American Cancer Society
American Diabetes Association
American Heart Association National Center  **
American Lung Association
Arthritis Foundation
GrowthHouse -Improving Care for the Dying
Hospice Foundation of America
Make-A-Wish Foundation
Muscular Dystrophy Association - USA
National Association for Home Care and Hospice
National Family Caregivers Association
National Kidney Foundation
National Multiple Sclerosis Society
National Stroke Association
Transverse Myelitis Association



OTHER DISEASES & CONDITIONS

Anorexia Nervosa

       Treatment for Anorexia

       Anorexia In-patient Care

AVM: Arteriovenous Malformation

Bulimia

      Bulimia Information

Cerebral Palsy

CRPS

Cryoglobulinemia

Depression    

      Caring for Depressed Persons 

      "Best Websites" for Caring for Depressed  Persons

Invisible Disabilities - videos of conditions "you can't see"

Multiple Myeloma 

      Multiple Myeloma: symptoms & treatment

      Multiple Myeloma: treatments & overview

Rare Diseases  - defined by NIH (USA)

     Ben's Friends - community for people with rare diseases

     Rare Disease Day - last day of February

     Rare Connect - connecting rare disease patients around the world

     NORD  - serves Americans with rare diseases through education, advocacy

     EURORDIS  -  serves Europeans with rare diseases through education, advocacy

 

 

 

 

 

 

 

 

* The Alzheimer’s Association is not responsible for information or advice provided by others, including information on websites that link to Association sites and on third party sites to which the Association links. Please direct any questions to weblink(at)alz.org.

**The American Heart Association is a national voluntary health agency to help reduce disability and death from cardiovascular diseases and stroke.

^The American Stroke Association is solely focused on reducing disability and death from stroke.

 

 


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